All in synchronicity as their fearless leader Miley Cyrus belted out her famous tunes on the Y100 Jingle Ball stage in Miami last December.If we can step outside the world of Orlando Bloom throwing punches at Justin Bieber and, for a brief moment, pay attention to things that really change lives, I'd love to share the quick stories about just two of my amazing friends. Worse, it left Kristen with a 50 percent chance of inheriting the same disease that ultimately claimed her mom's life when Kristen was just 17 years old.
As a society, are we paying attention to the things in life that really, truly matter? Although the disease is rare (a little over 300,000 people in the U. are affected by it), it causes chronic mental deterioration that leaves affected families devastated as they watch their loved ones wither slowly, over years, without any ability to help.After speaking with Brooke via Skype, Drew wrote and recorded "Fly," a (really) touching song that has garnered over 190,000 views and became Brooke's theme song and opportunity to inspire others before she unfortunately sucumbed to her battle with cancer.Now, on August 5, Leora, the rest of the Music is Medicine team, and These are things that really important. Less than a year later, at 18, she decided she'd share the experiences of her and her family and create a documentary about getting tested for the disease herself (18 is the legal testing age to see if she would have the same fate as her mom in the future).In an act of bravery and in an attempt to spark national debate about genetic testing and the search for cures to various genetic diseases, Kristen decided to make a documentary called about getting tested for Huntington's Disease.